A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance

M. Abidi; D.M. Aboulafia; M.K. Accordino; J.D. Acoba; M.S. Ahluwalia; S.A. Ahmad; A. Ajmera; S.I. Alimohamed; J. Altman; A.H. Angevine; Z. Bakouny; M.H. Bar; A. Bardia; J.S. Barnholtz-Sloan; B. Barrow McCollough; B. Bashir; G. Batist; T.S. Bekaii-Saab; S. Berg; E.H. Bernicker; D. Bhutani; M.A. Bilen; P. Bindal; R. Bishnoi; S. Blau; P. Bohachek; G. Boland; M. Bonnen; G. Bouchard; N. Bouganim; D.W. Bowles; F.J. Busser; O. Butt; A. Cabal; W.D. Cabalona; E.C. Cabebe; P. Caimi; J.L. Campian; T.M. Carducci; J.L. Chen; A. Cheng; D.D. Chism; T.K. Choueiri; M.J. Clark; J.M. Clement; J.M. Connors; E. Cook; C.R. Curran; A. Daher; M.E. Dailey; E.J. Davis; S.J. Dawsey; J.F. Deeken; S.A. Del Prete; G.D. Demetri; A. Desai; D.B. Doroshow; E.B. Durbin; P.C. Egan; R. Elias; A. Elkrief; D.J. Elms; A. Elshoury; B. Faller; D. Farmakiotis; L.A. Fecher; L.E. Feldman; C. Ferrario; M.A. Fiala; D.B. Flora; B. French; C.R. Friese; J.C. Fu; S.M. Gadgeel; J. Gainor; M.D. Galsky; G. Gantt; J.A. Garcia; B.A. Gartrell; M.E. Gatti-Mays; D.M. Gill; E.A. Gillaspie; A. Giordano; M.G. Glace; M.J. Glover; S. Goel; J.J. Graber; E.A. Griffiths; P. Grivas; P. Grover; A.P. Gulati; S. Gulati; S. Gupta; M. Gurley; N. Hafez; S. Halabi; T.R. Halfdanarson; B. Halmos; D.J. Hausrath; J.E. Hawley; C. Hennessy; R.S. Herbst; D.L. Hershman; C. Hoppenot; K.F. Hoskins; I. Hoyo-Ulloa; E. Hsu; C.-Y. Hsu; C. Hwang; J.Y. Islam; S.K. Jabbour; C. Jani; A. Jha; S.R. Jhawar; D.B. Johnson; M. Joshi; A. Kasi; K. Kelleher; H.F. Kennecke; A.R. Khaki; H. Khan; M. Khan; J. Kharofa; G. Kloecker; J.L. Knoble; A.A. Kulkarni; V. Kumar; P.E. Lammers; J.C. Leighton; C.A. Lemmon; M.A. Lewis; A. Li; X. Li; S.V. Liu; K.M. Lo; A. Loaiza-Bonilla; B.B. Logan; E.T. Loggers; G. de Lima Lopes; J.M. Loree; P. LoRusso; C.A. Low; M.B. Lustberg; G.H. Lyman; R.C. Lynch; S. Madhavan; D. Mahadevan; S.Z. Mahmood; A.-H. Mansoor; M. Marcum; M.-J. Markham; S.H. Mashru; T. Masters; B.H. Mavromatis; R.R. McKay; C. McNair; S. McWeeney; A.G. Menendez; H. Menon; R.A. Mesa; V. Mico; C. Miller; S. Mishra; R.S. Monahan; A.K. Morgans; M.F. Mulcahy; D. Mundt; S. Mushtaq; G. Nagaraj; S. Nagle; E.S. Nakasone; J.M. Nakayama; H.H. Nelson; E.R. Nemecek; R.H. Nguyen; A. Nizam; A. Nohria; P.V. Nuzzo; N. Ohri; A.J. Olszewski; S. Owenby; C.A. Painter; J.D. Palmer; O.A. Panagiotou; C. Park; M.M. Pasquinelli; J.M. Patel; K.G. Patel; P. Peddi; N.A. Pennell; S. Peters; C. Pilar; C. Pillainayagam; M. Puc; A.G. Ramirez; J. Rathmann; D. Ravindranathan; S.A. Reid; D.Y. Reuben; S.G. Revankar; K.L. Reynolds; Y.S. Rho; T.D. Rhodes; R.L. Rice; J. Riess; B.I. Rini; C. Rink; L.R. Rosen; L.J. Rosenstein; R.P. Rosovsky; B. Routy; M.A. Rovito; S.M. Rubinstein; M.W. Saif; M. Salazar; M. Santos Dutra; L. Schapira; A.L. Schmidt; B.A. Schroeder; G.K. Schwartz; C. Schwartz; M.T. Schweizer; O.K. Serrano; D.A. Shafer; P.K. Shah; D. Shah; M.R. Shah; S.A. Shah; C. Shah; G. Shaw; J.A. Shaya; Y. Shyr; D.A. Slosky; M. Smits; C.C. Solorzano; K. Stauffer; K.E. Stockerl-Goldstein; D.G. Stover; J. Stratton; C. Stratton; M. Streckfuss; S. Subbiah; L. Tachiki; E. Tadesse; M.A. Thompson; U. Topaloglu; M.D. Tucker; E.M. Van Allen; S. Van Loon; K. Vega-Luna; N.K. Venepalli; A. Verma; P. Vikas; S. Vinayak; D.C. Vinh; M.J. Wagner; S. Wall; L.L. Wang; J.L. Warner; F.H. Wehbe; P.L. Weinstein; M. Weiss; L.B. Weissmann; T.M. Wildes; N. Williams; T.M. Wise-Draper; W.A. Wood; J.T.-Y. Wu; E.M. Wulff-Burchfield; Z. Xie; W. Xu; A.C. Yeh; I.S. Yu; P.P. Yu; R. Zacks; Q.U. Zaman; H. Zaren; T. Zhang; A.Y. Zhou; H. Zhu; R.L. Zon; L. Zubiri

doi:10.1016/j.ccell.2020.10.022

Journal article

A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance

M. Abidi, D.M. Aboulafia, M.K. Accordino, J.D. Acoba, M.S. Ahluwalia, S.A. Ahmad, A. Ajmera, S.I. Alimohamed, J. Altman, A.H. Angevine, …

Cancer Cell, Vol.38(6), pp.761-766

2020

DOI: https://doi.org/10.1016/j.ccell.2020.10.022

Abstract

COVID-19

COVID-19 Testing

Data Accuracy

Electronic Health Records

Humans

Neoplasms

Quality Improvement

SARS-CoV-2

bleomycin

advisory committee

Article

cancer patient

clinical protocol

conceptual framework

coronavirus disease 2019

data base

feedback system

health care quality

Hodgkin disease

human

long term care

malignant neoplasm

medical informatics

medical record

oncology

outcome assessment

pandemic

patient care

practice guideline

priority journal

quality control

risk benefit analysis

Severe acute respiratory syndrome coronavirus 2

testis cancer

total quality management

virus genome

web browser

complication

diagnosis

electronic health record

isolation and purification

measurement accuracy

neoplasm

When the COVID-19 pandemic began, formal frameworks to collect data about affected patients were lacking. The COVID-19 and Cancer Consortium (CCC19) was formed to collect granular data on patients with cancer and COVID-19 at scale and as rapidly as possible. CCC19 has grown from five initial institutions to 125 institutions with >400 collaborators. More than 5,000 cases with complete baseline data have been accrued. Future directions include increased electronic health record integration for direct data ingestion, expansion to additional domestic and international sites, more intentional patient involvement, and granular analyses of still-unanswered questions related to cancer subtypes and treatments. © 2020 Elsevier Inc.

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Title: A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance
Creators: M. Abidi
D.M. Aboulafia
M.K. Accordino
J.D. Acoba
M.S. Ahluwalia
S.A. Ahmad
A. Ajmera
S.I. Alimohamed
J. Altman
A.H. Angevine
Z. Bakouny
M.H. Bar
A. Bardia
J.S. Barnholtz-Sloan
B. Barrow McCollough
B. Bashir
G. Batist
T.S. Bekaii-Saab
S. Berg
E.H. Bernicker
D. Bhutani
M.A. Bilen
P. Bindal
R. Bishnoi
S. Blau
P. Bohachek
G. Boland
M. Bonnen
G. Bouchard
N. Bouganim
D.W. Bowles
F.J. Busser
O. Butt
A. Cabal
W.D. Cabalona
E.C. Cabebe
P. Caimi
J.L. Campian
T.M. Carducci
J.L. Chen
A. Cheng
D.D. Chism
T.K. Choueiri
M.J. Clark
J.M. Clement
J.M. Connors
E. Cook
C.R. Curran
A. Daher
M.E. Dailey
E.J. Davis
S.J. Dawsey
J.F. Deeken
S.A. Del Prete
G.D. Demetri
A. Desai
D.B. Doroshow
E.B. Durbin
P.C. Egan
R. Elias
A. Elkrief
D.J. Elms
A. Elshoury
B. Faller
D. Farmakiotis
L.A. Fecher
L.E. Feldman
C. Ferrario
M.A. Fiala
D.B. Flora
B. French
C.R. Friese
J.C. Fu
S.M. Gadgeel
J. Gainor
M.D. Galsky
G. Gantt
J.A. Garcia
B.A. Gartrell
M.E. Gatti-Mays
D.M. Gill
E.A. Gillaspie
A. Giordano
M.G. Glace
M.J. Glover
S. Goel
J.J. Graber
E.A. Griffiths
P. Grivas
P. Grover
A.P. Gulati
S. Gulati
S. Gupta
M. Gurley
N. Hafez
S. Halabi
T.R. Halfdanarson
B. Halmos
D.J. Hausrath
J.E. Hawley
C. Hennessy
R.S. Herbst
D.L. Hershman
C. Hoppenot
K.F. Hoskins
I. Hoyo-Ulloa
E. Hsu
C.-Y. Hsu
C. Hwang
J.Y. Islam
S.K. Jabbour
C. Jani
A. Jha
S.R. Jhawar
D.B. Johnson
M. Joshi
A. Kasi
K. Kelleher
H.F. Kennecke
A.R. Khaki
H. Khan
M. Khan
J. Kharofa
G. Kloecker
J.L. Knoble
A.A. Kulkarni
V. Kumar
P.E. Lammers
J.C. Leighton
C.A. Lemmon
M.A. Lewis
A. Li
X. Li
S.V. Liu
K.M. Lo
A. Loaiza-Bonilla
B.B. Logan
E.T. Loggers
G. de Lima Lopes
J.M. Loree
P. LoRusso
C.A. Low
M.B. Lustberg
G.H. Lyman
R.C. Lynch
S. Madhavan
D. Mahadevan
S.Z. Mahmood
A.-H. Mansoor
M. Marcum
M.-J. Markham
S.H. Mashru
T. Masters
B.H. Mavromatis
R.R. McKay
C. McNair
S. McWeeney
A.G. Menendez
H. Menon
R.A. Mesa
V. Mico
C. Miller
S. Mishra
R.S. Monahan
A.K. Morgans
M.F. Mulcahy
D. Mundt
S. Mushtaq
G. Nagaraj
S. Nagle
E.S. Nakasone
J.M. Nakayama
H.H. Nelson
E.R. Nemecek
R.H. Nguyen
A. Nizam
A. Nohria
P.V. Nuzzo
N. Ohri
A.J. Olszewski
S. Owenby
C.A. Painter
J.D. Palmer
O.A. Panagiotou
C. Park
M.M. Pasquinelli
J.M. Patel
K.G. Patel
P. Peddi
N.A. Pennell
S. Peters
C. Pilar
C. Pillainayagam
M. Puc
A.G. Ramirez
J. Rathmann
D. Ravindranathan
S.A. Reid
D.Y. Reuben
S.G. Revankar
K.L. Reynolds
Y.S. Rho
T.D. Rhodes
R.L. Rice
J. Riess
B.I. Rini
C. Rink
L.R. Rosen
L.J. Rosenstein
R.P. Rosovsky
B. Routy
M.A. Rovito
S.M. Rubinstein
M.W. Saif
M. Salazar
M. Santos Dutra
L. Schapira
A.L. Schmidt
B.A. Schroeder
G.K. Schwartz
C. Schwartz
M.T. Schweizer
O.K. Serrano
D.A. Shafer
P.K. Shah
D. Shah
M.R. Shah
S.A. Shah
C. Shah
G. Shaw
J.A. Shaya
Y. Shyr
D.A. Slosky
M. Smits
C.C. Solorzano
K. Stauffer
K.E. Stockerl-Goldstein
D.G. Stover
J. Stratton
C. Stratton
M. Streckfuss
S. Subbiah
L. Tachiki
E. Tadesse
M.A. Thompson
U. Topaloglu
M.D. Tucker
E.M. Van Allen
S. Van Loon
K. Vega-Luna
N.K. Venepalli
A. Verma
P. Vikas
S. Vinayak
D.C. Vinh
M.J. Wagner
S. Wall
L.L. Wang
J.L. Warner
F.H. Wehbe
P.L. Weinstein
M. Weiss
L.B. Weissmann
T.M. Wildes
N. Williams
T.M. Wise-Draper
W.A. Wood
J.T.-Y. Wu
E.M. Wulff-Burchfield
Z. Xie
W. Xu
A.C. Yeh
I.S. Yu
P.P. Yu
R. Zacks
Q.U. Zaman
H. Zaren
T. Zhang
A.Y. Zhou
H. Zhu
R.L. Zon
L. Zubiri
Publication Details: Cancer Cell, Vol.38(6), pp.761-766
Publisher: Cell Press
Identifiers: 991006160696702656
Language: English
Resource Type: Journal article